Even though we did have a great summer it wasn't all fun and games. At the end of June we noticed Jocelyn would favor a certain side or limp sometimes. She would also complain of pain in certain joints but not enough that she would stop swimming or playing.
About the beginning of July she was waking up in the middle of the night crying from the pain and her joints were visibly swollen. When she did our 4th of July Ninja course she hopped through the whole thing....wanting to participate but unwilling to weight bare on her ankle which was swollen and painful.
So I took her to the pediatrician and she had to have some labs drawn...which all came back negative. So they shoulder shrugged and said if it is still bad in a week let us know...which it was and we consulted more doctors....and more labs were drawn and the swelling was transient...first her ankle hurt then it was normal but her knee was swollen and hurt...then her hip then her neck then her chest then her ankle again...and around and around it went.
After a month we were sent up to Primary Children's Hospital to consult with their Rheumatology clinic...Again EVERY lab (and they checked a billion things) came back normal....and for a few weeks she did ok.
But then school started and she couldn't walk or move and I was carrying her to her classroom (because she REALLY wanted to go to school) and she would roll around on a rolling chair and I would carry her home. One day was particularly horrible and her teacher who was keeping close watch on her called me to come get her because she was crying and stuck (she couldn't get up or down or move).
So more consulting...it didn't present autoimmune but it was responding like an autoimmune type arthritis....And they perscribed some stronger medicine and now she is ok most of the time...But she still has times when she hurts and it is sad enough to break the most sturdy heart. But through it all she has been a trooper and has never milked the situation. She wants to do what everyone else is and so most of the time she does but she might need piggy back rides during hikes. Can't even say how much we love this girl.
The view from Primary Children's is amazing!
Hopping along to her appointment....
Thumbs up for a good hospital cafeteria....